Resources

Many of us are constantly looking for more information about Frontotemporal Dementia (FTD) and other dementias to help understand what’s happening to us, our family and our friends who are affected by these diseases. Dementia has a profound effect not only on the sufferer, but everyone in his or her life. Through links on the right side of the screen as well as posts and comments, we’ll share what we’ve found, and we invite you to tell us about resources you’ve found helpful, which we can also share with others.

Feel free to add information on our Guestbook page or through the Contact Us form. We’ll be glad to add your suggestions to our Resource pages.


Books by and about Persons with Dementia

Blogs and Websites by and about Persons with Dementia

Film/Video, Audio and Multimedia Programs about Dementia

Books about Dementia

Online Support Groups and Support Resources

Dementia Information and References: Online

Dementia Conferences and Events

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Blogs and Websites by and about Persons with Dementia

I Am Dying – “The Prospect concentrates the Mind wonderfully” Bruce Bane’s blog: Living with Dementia – “Reflections on how dementia affects my life and relationships”

Dementia Conferences and Events

7th International Conference on Frontotemporal Dementias – October 6 – 8, 2010. Indianapolis, Indiana USA

Dementia Information and References: Online

Blog Post: Adapting Your Home for Family Members With Alzheimer’s or Dementia, Kathryn Haslanger. The Huffington Post, August 19, 2010. Extended Article: Nurturing the Heart: creativity, art therapy and dementia, by Patricia Baines. Practically, the paper is intended for all those people who have or live with and interact with those courageous individuals who have dementia. (pdf …

Film/Video, Audio and Multimedia Programs about Dementia

Planning for Hope – Trailer for documentary film about Frontotemporal Dementia and its impact on people. It made its debut May 14, 2010 and has been shown in several professional settings. Beginning in April, 2011, Planning for Hope: Living with Frontotemporal Disease has been shown over 210 times on U.S. Public Television channels in 53 …

Online Support Groups and Support Resources

FTD Support Forum

Life in the Balance

Books by and about Persons with Dementia

Young Hope The Broken Road by Tracy Mobley We’ve chatted online with Tracy Mobley, a person with dementia, who’s been a strong advocate for support of people affected by dementia as well as educating the public about these diseases. In her book, Young Hope The Broken Road, Tracy writes about Dementia and Alzheimer’s Disease as …

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